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master's thesis
Kvaliteta života osobe sa spinocerebelarnom ataksijom
Zagreb: University of Zagreb, Faculty of Education and Rehabilitation Sciences, 2022. urn:nbn:hr:158:462478
Uršan, Ivona
University of Zagreb
Faculty of Education and Rehabilitation Sciences

Institutional repository: Faculty of Education and Rehabilitation Sciences

Cite this document

Uršan, I. (2022). Kvaliteta života osobe sa spinocerebelarnom ataksijom (Master's thesis). Zagreb: University of Zagreb, Faculty of Education and Rehabilitation Sciences. Retrieved from https://urn.nsk.hr/urn:nbn:hr:158:462478

Uršan, Ivona. "Kvaliteta života osobe sa spinocerebelarnom ataksijom." Master's thesis, University of Zagreb, Faculty of Education and Rehabilitation Sciences, 2022. https://urn.nsk.hr/urn:nbn:hr:158:462478

Uršan, Ivona. "Kvaliteta života osobe sa spinocerebelarnom ataksijom." Master's thesis, University of Zagreb, Faculty of Education and Rehabilitation Sciences, 2022. https://urn.nsk.hr/urn:nbn:hr:158:462478

Uršan, I. (2022). 'Kvaliteta života osobe sa spinocerebelarnom ataksijom', Master's thesis, University of Zagreb, Faculty of Education and Rehabilitation Sciences, accessed 10 July 2024, https://urn.nsk.hr/urn:nbn:hr:158:462478

Uršan I. Kvaliteta života osobe sa spinocerebelarnom ataksijom [Master's thesis]. Zagreb: University of Zagreb, Faculty of Education and Rehabilitation Sciences; 2022 [cited 2024 July 10] Available at: https://urn.nsk.hr/urn:nbn:hr:158:462478

I. Uršan, "Kvaliteta života osobe sa spinocerebelarnom ataksijom", Master's thesis, University of Zagreb, Faculty of Education and Rehabilitation Sciences, Zagreb, 2022. Available at: https://urn.nsk.hr/urn:nbn:hr:158:462478

Metadata
TitleKvaliteta života osobe sa spinocerebelarnom ataksijom
Title (english)Quality of life of a person with spinocerebellar ataxia
AuthorIvona Uršan
MentorRenata Pinjatela (mentor)
Committee memberRenata Pinjatela (predsjednik povjerenstva)
Committee memberRenata Martinec (član povjerenstva)
Committee memberDamir Miholić (član povjerenstva)
GranterUniversity of Zagreb
Faculty of Education and Rehabilitation Sciences
Zagreb
Defense date and country2022-09-19, Croatia
Scientific / art field,
discipline and subdiscipline		SOCIAL SCIENCES
Education/Rehabilitation Sciences
Abstract
Kvaliteta života nekada se promatrala samo iz perspektive pacijenata dok su u novije vrijeme istraživanja proširena na članove njihovih obitelji. Shodno tome, provedeno je kvalitativno istraživanje Kvaliteta života osobe sa spinocerebelarnom ataksijom pri čemu je posebni naglasak stavljen na članove njezine obitelji te iskustvo podrške iz tri različita sustava – odgoja i obrazovanja, socijalne skrbi i zdravstva. Prilikom provedbe istraživanja korišten je polustruktuirani intervju dok su rezultati istraživanja obrađeni tematskom analizom. U istraživanju je sudjelovalo dvoje ispitanika iz tročlane obitelji manje gradske sredine. Intervju je proveden s osobom sa spinocerebelarnom ataksijom i njezinim skrbnikom odnosno mladićevom majkom. Nalazi dobiveni istraživanjem ukazali su na najizraženije propuste iz tri sustava – odgoja i obrazovanja, socijalne skrbi i zdravstva. Navedeni propusti predstavljaju nužne preporuke za promjene i poboljšanje sustava.
Abstract (english)
The quality of life used to be observed only from the patients' perspective, while more recently research has been extended to their family members. Consequently, a qualitative study was conducted Quality of life of a person with spinocerebellar ataxia with a special emphasis on the experience of support from three different systems - upbringing and education, social care and health care. During the implementation of the research, a semi-structured interview was used, while the results of the research were processed by thematic analysis. Two respondents from a three-member family from a small town took part in the research. An interview was conducted with a person with spinocerebellar ataxia and their caregiver, their mother. The findings of the research pointed to the most pronounced failures in three systems - upbringing and education, social welfare and health care. The mentioned failures represent the main recommendations for changes and improvement of the system.
Keywords
Keywords (english)
Languagecroatian
URN:NBNurn:nbn:hr:158:462478
Study programmeTitle: Graduate study of Educational Rehabilitation
Study programme type: university
Study level: graduate
Academic / professional title: magistar/magistra edukacijske rehabilitacije (magistar/magistra edukacijske rehabilitacije)
Type of resourceText
File originBorn digital
Access conditionsOpen access
Terms of useLicence In copyright icon
Created on2022-11-02 13:30:00