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master's thesis
Izrada alata za procjenu unosa fenilalanina sustavom zamjena te procjena kvalitete života oboljelih od fenilketonurije
Zagreb: University of Zagreb, Faculty of Food Technology and Biotechnology, 2023. urn:nbn:hr:159:515822
Pezelj, Maja
University of Zagreb
Faculty of Food Technology and Biotechnology
Department of Food Quality Control
Laboratory for Food Chemistry and Biochemistry

Institutional repository: Repository of the Faculty of Food Technology and Biotechnology

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Pezelj, M. (2023). Izrada alata za procjenu unosa fenilalanina sustavom zamjena te procjena kvalitete života oboljelih od fenilketonurije (Master's thesis). Zagreb: University of Zagreb, Faculty of Food Technology and Biotechnology. Retrieved from https://urn.nsk.hr/urn:nbn:hr:159:515822

Pezelj, Maja. "Izrada alata za procjenu unosa fenilalanina sustavom zamjena te procjena kvalitete života oboljelih od fenilketonurije." Master's thesis, University of Zagreb, Faculty of Food Technology and Biotechnology, 2023. https://urn.nsk.hr/urn:nbn:hr:159:515822

Pezelj, Maja. "Izrada alata za procjenu unosa fenilalanina sustavom zamjena te procjena kvalitete života oboljelih od fenilketonurije." Master's thesis, University of Zagreb, Faculty of Food Technology and Biotechnology, 2023. https://urn.nsk.hr/urn:nbn:hr:159:515822

Pezelj, M. (2023). 'Izrada alata za procjenu unosa fenilalanina sustavom zamjena te procjena kvalitete života oboljelih od fenilketonurije', Master's thesis, University of Zagreb, Faculty of Food Technology and Biotechnology, accessed 23 November 2024, https://urn.nsk.hr/urn:nbn:hr:159:515822

Pezelj M. Izrada alata za procjenu unosa fenilalanina sustavom zamjena te procjena kvalitete života oboljelih od fenilketonurije [Master's thesis]. Zagreb: University of Zagreb, Faculty of Food Technology and Biotechnology; 2023 [cited 2024 November 23] Available at: https://urn.nsk.hr/urn:nbn:hr:159:515822

M. Pezelj, "Izrada alata za procjenu unosa fenilalanina sustavom zamjena te procjena kvalitete života oboljelih od fenilketonurije", Master's thesis, University of Zagreb, Faculty of Food Technology and Biotechnology, Zagreb, 2023. Available at: https://urn.nsk.hr/urn:nbn:hr:159:515822

Metadata
TitleIzrada alata za procjenu unosa fenilalanina sustavom zamjena te procjena kvalitete života oboljelih od fenilketonurije
Title (english)Development of a tool for assessing the intake of phenylalanine through the replacement system and assessing the quality of life of patients with phenylketonuria
AuthorMaja Pezelj
MentorIvana Rumora Samarin (mentor)
MentorValentina Rahelić (komentor)
Committee memberMartina Bituh (predsjednik povjerenstva)
Committee memberValentina Rahelić (član povjerenstva)
Committee memberIvana Rumbak (član povjerenstva)
GranterUniversity of Zagreb
Faculty of Food Technology and Biotechnology
(Department of Food Quality Control)
(Laboratory for Food Chemistry and Biochemistry)
Zagreb
Defense date and country2023-09-27, Croatia
Scientific / art field,
discipline and subdiscipline		BIOTECHNICAL SCIENCES
Nutrition
Abstract
Fenilketonurija je genetski poremećaj metabolizma fenilalanina, koji može ozbiljno utjecati na funkciju mozga. Pravovremeno otkrivanje i adekvatna terapija, koja uključuje niskoproteinsku prehranu s dodacima prehrani bez fenilalanina, ključni su za normalan razvoj oboljele djece te zbrinjavanje bolesti kasnije u životu. No, takva dijeta može biti izazovna za oboljele i njihove obitelji zbog ograničenja u odabiru te pripremi hrane kao i socijalnim aktivnostima. Cilj ovog rada bio je izraditi edukativni alat za oboljele te je provedeno istraživanje s 38 ispitanika, uključujući djecu i odrasle, oboljele od fenilketonurije, kako bi se procijenila kvaliteta njihovog života. Većina ispitanika (više od 50 %) nema simptome povezane s fenilketonurijom. Također, većina njih ne prati strogu dijetu i rijetko računa udio fenilalanina u hrani, umjesto toga biraju namirnice iz preporučenih kategorija hrane. Najveći udio ispitanika (više od 70 %) koristi formule aminokiselina kao dio svoje prehrane. Većina ispitanika (57,9 %) smatra da bi im koristio izrađeni edukativni alat.
Abstract (english)
Phenylketonuria is a genetic disorder of phenylalanine metabolism, which can seriously affect brain function. Timely detection and adequate therapy, which includes a low-protein diet with food supplements without phenylalanine, are crucial for the normal development of affected children and treatment of the disease later in life. However, such a diet can be challenging for patients and their families due to limitations in food selection and preparation as well as social activities. The aim of this thesis was to create an educational tool for patients, and a study was conducted with 38 respondents, including children and adults, suffering from phenylketonuria, in order to assess their quality of life. Most respondents (more than 50 %) do not have symptoms related to phenylketonuria. Also, most of them do not follow a strict diet and rarely calculate the proportion of phenylalanine in food, instead choosing foods from the recommended food categories. The largest share of respondents (more than 70 %) uses amino acid formulas as part of their diet. Most respondents (57.9 %) believe that they would benefit from a prepared educational tool.
Keywords
Keywords (english)
Languagecroatian
URN:NBNurn:nbn:hr:159:515822
Study programmeTitle: Nutrition
Study programme type: university
Study level: graduate
Academic / professional title: magistar/magistra nutricionizma (magistar/magistra nutricionizma)
Type of resourceText
File originBorn digital
Access conditionsOpen access
Terms of useLicence Attribution-NoDerivatives 4.0 International (CC BY-ND 4.0) icon
Created on2024-05-24 08:39:52