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undergraduate thesis
Kvaliteta života osoba oboljelih od neurofibromatoze tip 1
Zagreb: University of Zagreb, Faculty of Law, 2020. urn:nbn:hr:199:777831
Mirković Knaus, Ida
University of Zagreb
Faculty of Law
In social work
Social Work with Disabled Persons

Institutional repository: Repository Faculty of Law University of Zagreb

Cite this document

Mirković Knaus, I. (2020). Kvaliteta života osoba oboljelih od neurofibromatoze tip 1 (Undergraduate thesis). Zagreb: University of Zagreb, Faculty of Law. Retrieved from https://urn.nsk.hr/urn:nbn:hr:199:777831

Mirković Knaus, Ida. "Kvaliteta života osoba oboljelih od neurofibromatoze tip 1." Undergraduate thesis, University of Zagreb, Faculty of Law, 2020. https://urn.nsk.hr/urn:nbn:hr:199:777831

Mirković Knaus, Ida. "Kvaliteta života osoba oboljelih od neurofibromatoze tip 1." Undergraduate thesis, University of Zagreb, Faculty of Law, 2020. https://urn.nsk.hr/urn:nbn:hr:199:777831

Mirković Knaus, I. (2020). 'Kvaliteta života osoba oboljelih od neurofibromatoze tip 1', Undergraduate thesis, University of Zagreb, Faculty of Law, accessed 27 November 2024, https://urn.nsk.hr/urn:nbn:hr:199:777831

Mirković Knaus I. Kvaliteta života osoba oboljelih od neurofibromatoze tip 1 [Undergraduate thesis]. Zagreb: University of Zagreb, Faculty of Law; 2020 [cited 2024 November 27] Available at: https://urn.nsk.hr/urn:nbn:hr:199:777831

I. Mirković Knaus, "Kvaliteta života osoba oboljelih od neurofibromatoze tip 1", Undergraduate thesis, University of Zagreb, Faculty of Law, Zagreb, 2020. Available at: https://urn.nsk.hr/urn:nbn:hr:199:777831

Metadata
TitleKvaliteta života osoba oboljelih od neurofibromatoze tip 1
Title (english)Quality of life in persons with neurofibromatosis type 1
AuthorIda Mirković Knaus
MentorMarko Buljevac (mentor)
Committee memberMarko Buljevac (predsjednik povjerenstva)
Committee memberZdravka Leutar (član povjerenstva)
Committee memberAna Opačić (član povjerenstva)
GranterUniversity of Zagreb
Faculty of Law
(In social work)
(Social Work with Disabled Persons)
Zagreb
Defense date and country2020-09-18, Croatia
Scientific / art field,
discipline and subdiscipline		SOCIAL SCIENCES
Social Activities
Specific Areas of Social Work
Abstract
Neurofibromatoza tip 1 (NF1) relativno je rijetka genetska, neizlječiva bolest progresivne naravi, karakterizirana u prvom redu brojnim kožnim promjenama, dok istovremeno dovodi i do promjena u svim organskim sustavima. Brojne promjene u zdravstvenom stanju osoba s NF1 mogu značajno otežavati njihovo svakodnevno funkcioniranje, a time i narušavati kvalitetu njihovog života. U ovom preglednom radu fokus je stavljen upravo na prikaz kvalitete života osoba oboljelih od NF1. Tako su u radu sustavno razrađene podteme tjelesne, psihološke, socijalne te okolinske dimenzije kvalitete života osoba oboljelih od NF1. Pokazalo se da je kvaliteta života osoba s NF1 smanjena u svim navedenim dimenzijama u odnosu na opću populaciju. Takvi podaci ukazuju na potrebu da se, uz zdravstvenu skrb, razviju i različite psihosocijalne intervencije kao dio opće brige o zdravlju osoba s NF1. Shodno tome, u radu su predstavljene različite prakse i metode socijalnog rada kojima bi ta profesija mogla doprinijeti unapređenju kvalitete života osoba oboljelih od NF1 i njihovih obitelji.
Abstract (english)
Neurofibromatosis type 1 (NF1) is a relatively rare genetic, progressive disease with no available cure, characterized primarily by numerous skin changes, while also leading to changes in all of the organ systems. Numerous changes in the health status of people with NF1 can significantly impede their daily functioning, and thus impair their quality of life. This paper focuses on the quality of life of people with NF1. The paper systematically elaborates on the sub-topics of the physical, psychological, social, and environmental dimensions of the quality of life of people with NF1. The quality of life of people with NF1 shows to be reduced in all of these dimensions compared to the general population. Such data suggest the need for development, in addition to health care, various psychosocial interventions as a part of the general health care of people with NF1. On that note, the paper presents various practices and methods of social work by which this profession could contribute to the improvement of the quality of life of people with NF1 and their families.
Keywords
Keywords (english)
Languagecroatian
URN:NBNurn:nbn:hr:199:777831
Study programmeTitle: Social Work
Study programme type: university
Study level: undergraduate
Academic / professional title: sveučilišni/a prvostupnik/prvostupnica (baccalaureus/baccalaurea) socijalnog rada (sveučilišni/a prvostupnik/prvostupnica (baccalaureus/baccalaurea) socijalnog rada)
Type of resourceText
File originBorn digital
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Created on2020-09-25 07:21:12