Title Kvaliteta života djece oboljele od šećerne bolesti tip 1 i njihove obitelji
Title (english) The life quality of children with diabetes type 1 and their family
Author Iva Pernek
Mentor Melita Sajko (mentor)
Committee member Ivana Živoder (predsjednik povjerenstva)
Committee member Melita Sajko (član povjerenstva)
Committee member Štefanija Munivrana (član povjerenstva)
Granter University North (University centre Varaždin) (Department of Nursing) Koprivnica
Defense date and country 2017-08-30, Croatia
Scientific / art field, discipline and subdiscipline BIOMEDICINE AND HEALTHCARE Clinical Medical Sciences Nursing
Abstract Šećerna bolest jedna je od najčešćih kroničnih bolesti. Kako bi se pacijent osjećao dobro, neophodno je redovito mjeriti razinu glukoze te ju održavati urednom. Neizlječivost bolesti te neprestana briga tijekom cijelog života bolesnika može utjecati na kvalitetu njegovog života te kvalitetu života njegove obitelji. Liječenje je jako kompleksno i zahtjeva potpuno sudjelovanje bolesnika, također u liječenju veliku ulogu ima pomoć i podrška obitelji. Edukacijom bolesnik se osposobljava za samostalno vođenje bolesti te mu se tako povećava kvaliteta života. Svrha ovog rada bila je istražiti kvalitetu života djece oboljele od dijabetesa tip 1 i njihove obitelji te otkriti promjene do kojih dolazi zbog pojave bolesti. U teorijskom dijelu opisana je šećerna bolest, kvaliteta života, moguće komplikacije, promjene koje utječu na kvalitetu života šećernih bolesnika, a posebna važnost je dana sudjelovanju oboljelog i njegove obitelji u procesu liječenja. U empirijskom dijelu rada, prikazani su podatci online anketa o kvaliteti života djece oboljele od dijabetesa tip 1 i njihove obitelji, koju su rješavali roditelji oboljele djece. U istraživačkom dijelu rada, dobiveni su rezultati suprotni od očekivanih, većini oboljelih nakon otkrića bolesti kvaliteta života nije se značajno smanjila. Ispitanici navode kako su im promjene nakon otkrića bolesti, najviše vidljive u prehrani, zbog promjene prehrambenih navika te strogog režima prehrane, planiranju svakodnevnih aktivnosti djeteta, također teškoće im uzrokuje česta mjerenja GUK-a. Većina roditelja navodi kako su bolest vrlo brzo prihvatili, također neki roditelji navode kako im je bolest donijela velike promjene u njihovom životu.
Abstract (english) Diabetes is one of the most expanded chronic diseases. Adequately controlled diabetes is essential to maintain patient’s health. Incurableness of the disease and constant care during the patient’s lifetime can influence on quality of his and the life of his family. The treatment of diabetes is very complex and it requires patient’s full involvement and cooperation. The family has huge role in treatment in terms of help and support. The patient is equipped with knowledge from the field of health education in order to keep a record of their illness independently and improve the quality of their life. The purpose of this research was to look into the life quality of children with diabetes type 1 and their families and to detect changes caused by diabetes. The theoretical part is a nutshell summarizes the basic facts on diabetes, furthermore describes the quality of life, possible complications, the impact of changes on the life quality of diabetic patients and family involvement in the process of treatment. The empirical part of this paper contains information which were collected through online research on the life quality of children with diabetes type 1 and their family, which included the parents of the children. In the research part of thesis, results were in oppositions to our expectations, that quality of life of the majority of patients with diabetes wasn't significantly decreased. The changes that are the most frequent for patients are most observable in the field of nutrition, since diabetics have to change their eating habits drastically, while they, at the same time struggle with injecting themselves with insulin and regularly testing their blood sugar. Most parents accepted their child’s disease as a part of the everyday life and they quickly reconciled with it. However, some other parents describe, that the disease brought about large changes in their life.
Keywords
šećerna bolest
kvaliteta života
podrška obitelji
promjene
Keywords (english)
diabetes
quality of life
family support
changes
Language croatian
URN:NBN urn:nbn:hr:122:216094
Study programme Title: Nursing Study programme type: professional Study level: undergraduate Academic / professional title: stručni/a prvostupnik/prvostupnica (baccalaureus/baccalaurea) sestrinstva (stručni/a prvostupnik/prvostupnica (baccalaureus/baccalaurea) sestrinstva)
Type of resource Text
File origin Born digital
Access conditions Open access
Terms of use
Created on 2017-09-11 13:00:53