The aim of this paper is to gain insight into the family's experience of having a child with Dravet syndrome in Croatia. More precisely on information about their child and his diagnosis, information about quality and quantity of communication with professionals who work with their children with Dravet syndrome, their opinion about the quality of health and social care, the challenges they face, the amount and type of support they receive from other people in their lives and the quality and quantity of time spent with their children. Gaining insight into the perspective of parenting a child with Dravet syndrome enables a better understanding of the challenges they face every day. In this research participated 10 mothers who are registered members of a Dravet syndrome Croatia association. Questionnaire Questionnaire about experiences of parenting a child with Dravet syndrome is made for the aim of this research. The descriptive scientific-research approach collected data. The parents of children with Dravet syndrome described the diagnosis of their child, clinical presentation of Dravet syndrome, developmental delays, and epileptic seizures characteristic for their child. The results confirm the fact that Dravet syndrome is a rare and specific disease, and that the final diagnosis could take up to years. Sometimes, children with Dravet syndrome could be misdiagnosed. Most of the parents seek their support from the parents of the other children with Dravet syndrome. This research is important because it is the first one in Croatia with a population of children with Dravet syndrome. It is very important to implement this kind of researches who are based on a population with rare disorders so the professionals could improve their competencies in working with children with Dravet syndrome and their families. The main drawback is the small number of participants and relatively small sample because of what the results obtained cannot be generalized to the total population of parents and children with Dravet syndrome.