prikaz prve stranice dokumenta The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries
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The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries
Croatian Medical Journal, 60 (2019), 6; 488-493. urn:nbn:hr:105:689929
Draušnik, Željka; Cerovečki, Ivan; Štefančić, Vesna; Mihel, Sandra; Stevanović, Ranko; Barišić, Nina; Matković, Hana; Melša, Matea; Mirić, Maric; Pjevač, Neda; Benjak, Tomislav

Institucijski repozitorij: Dr Med - digitalni repozitorij Medicinskog fakulteta Sveučilišta u Zagrebu

Citirajte ovaj rad

Draušnik, Ž., Cerovečki, I., Štefančić, V., Mihel, S., Stevanović, R., Barišić, N. ... Benjak, T. (2019). The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries. Croatian Medical Journal, 60. (6), 488-493. Preuzeto s https://urn.nsk.hr/urn:nbn:hr:105:689929

Draušnik, Željka, et al. "The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries." Croatian Medical Journal, vol. 60, br. 6, 2019, str. 488-493. https://urn.nsk.hr/urn:nbn:hr:105:689929

Draušnik, Željka, Ivan Cerovečki, Vesna Štefančić, Sandra Mihel, Ranko Stevanović, Nina Barišić, Hana Matković, et al. "The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries." Croatian Medical Journal 60, br. 6 (2019): 488-493. https://urn.nsk.hr/urn:nbn:hr:105:689929

Draušnik, Ž., et al. (2019) 'The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries', Croatian Medical Journal, 60(6), str. 488-493. Preuzeto s: https://urn.nsk.hr/urn:nbn:hr:105:689929 (Datum pristupa: 08.11.2024.)

Draušnik Ž, Cerovečki I, Štefančić V, Mihel S, Stevanović R, Barišić N, i sur.. The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries. Croatian Medical Journal [Internet]. 12.2019. [pristupljeno 08.11.2024.];60(6):488-493. Dostupno na: https://urn.nsk.hr/urn:nbn:hr:105:689929

Ž. Draušnik, et al., "The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries", Croatian Medical Journal, vol. 60, br. 6, str. 488-493, Prosinac 2019. [Online]. Dostupno na: https://urn.nsk.hr/urn:nbn:hr:105:689929. [Citirano: 08.11.2024.]

Za citiranje koristite ovu mrežnu adresu: https://urn.nsk.hr/urn:nbn:hr:105:689929
Podaci o radu
Naslov (engleski)The prevalence of muscular dystrophy and spinal muscular atrophy in Croatia: data from national and non-governmental organization registries
AutorŽeljka Draušnik
AutorIvan Cerovečki
AutorVesna Štefančić
AutorSandra Mihel
AutorRanko Stevanović
AutorNina Barišić
AutorHana Matković
AutorMatea Melša
AutorMaric Mirić
AutorNeda Pjevač
AutorTomislav Benjak
Autorova ustanovaSveučilište u Zagrebu
Medicinski fakultet
Znanstveno / umjetničko
područje, polje i grana		BIOMEDICINA I ZDRAVSTVO
Javno zdravstvo i zdravstvena zaštita
Sažetak (engleski)
Aim: To determine the prevalence of muscular dystrophy (MD) and spinal muscular atrophy (SMA) in Croatia by use of multiple epidemiological tools. ----- Methods: This epidemiological study collected data from three national patient registries and one database of a non-governmental organization (NGO) of MD and SMA patients. The study involved all individuals who either had undergone hospital treatment for MD or SMA, had consulted their primary health care providers for MD- and SMA-related symptoms, were listed as disabled due to MD or SMA, or were members of the mentioned NGO in 2016. In order to prevent double entries, we created a new database of all living individuals, each with a unique identification number. The prevalence rates for 2016 were calculated by age and sex groups. ----- Results: There were 926 patients diagnosed with MD (544 men). Most men diagnosed with MD were in the age group 10-19, whereas most women were in the age group 50-59. MD prevalence in Croatia was 22.2 per 100 000 population. There were 392 patients diagnosed with SMA (198 men). Most men with SMA were in the age group 50-59, whereas most women were in the age group 60-69. SMA prevalence in Croatia was 9.3 per 100 000 population. ----- Conclusion: SMA prevalence rate in Croatia is similar to SMA prevalence worldwide. However, MD prevalence rate is higher than worldwide estimates. This difference could be attributed to the fact that we could not confirm whether every patient registered in these databases actually met the diagnostic criteria for MD and SMA.
Jezikengleski
Vrsta publikacijeZnanstveni rad - Izvorni znanstveni rad
Status objaveObjavljen
Vrsta recenzijeRecenziran
Verzija publikacijeObjavljena verzija rada (izdavačev PDF)
Naslov časopisaCroatian Medical Journal
Brojčani podacivol. 60, br. 6, str. 488-493
p-ISSN0353-9504
URN:NBNurn:nbn:hr:105:689929
Datum objave publikacije2019-12
URL dokumentahttp://www.cmj.hr/2019/60/6/31894913.htm
Vrsta resursaTekst
Prava pristupaOtvoreni pristup
Uvjeti korištenjaIkona licence Zaštićeno autorskim pravom.
Datum i vrijeme pohrane2024-03-28 10:31:38